We use necessary cookies that allow our site to work. We also set optional cookies that help us improve our website. For more information about the types of cookies we use, visit our Cookies policy.

Cookie settings

Lived Experience of Neglected Tropical Diseases

31 May 2024

Share

Faith Chasakara and her friend collect water in the well in her village, near Bindura in Zimbabwe. Faith is wearing a pretty patterned dress, a blue bucket sits to the side of the well and there are homes in the background with trees dotted around.

Faith Chasakara collects water in her village

Marcus Perkins

Meet some of the inspiring individuals who attended the ‘Affected Voices’ conference in Bindura, Zimbabwe.

he ‘Affected Voices’ conference in Bindura, Zimbabwe.  This groundbreaking event, organized by TIBA (Tackling Infections for the Benefit of Africa), is the first of its kind since the Kigali Declaration on neglected tropical diseases (NTDs).

Marcus Perkins

This groundbreaking event, organized by TIBA (Tackling Infections for the Benefit of Africa), is the first of its kind since the Kigali Declaration on neglected tropical diseases (NTDs). The declaration emphasizes that those affected by NTDs should be at the forefront of NTD programs and decision-making processes.

he ‘Affected Voices’ conference in Bindura, Zimbabwe.  This groundbreaking event, organized by TIBA (Tackling Infections for the Benefit of Africa), is the first of its kind since the Kigali Declaration on neglected tropical diseases (NTDs).

Marcus Perkins

Here, we share the powerful stories of those who have lived with NTDs, their struggles in accessing care, and their dreams of a world without these diseases. These narratives are a vital part of the ongoing global campaign to eliminate and eradicate NTDs, amplifying the voices of those who have endured these challenges first-hand.

Emelia from Mupfure area of Zimbabwe, shares her story of bilharzia and how accessing treatment and medication changed her life.

Silvanus from Tanzania tells his story of schistosomiasis, how it affected his life and his work, but also how he received treatment and the Drs who fought for him.

Martha, who lives in Harare, shares her story of how a routine visit to the doctor for painkillers alerted her to historic bilharzia damage.

Tafadzwa Banda is from the Shamva District in Bindura in Zimbabwe. She shared her story of how living with lymphatic filariasis changed her life.

Rosemary Makarutse, from Madziva Nyamaropa in Zimbabwe, shares her story of getting bitten by a snake and her road to receiving treatment.

Catherine Kapaira from Sangoramambo Village in Zimbabwe shares the story of her daughter, who was bitten by a snake.